Painting by Anna Forlati

My reading has always been all over the place. There are genres I love, like mysteries and gardening books, and I love children’s literature. But reading is how I process most things in life. Books and authors are my guides. I am curious and a learner and have gotten my best education from my books. So simply put, I read all kinds of things, and when I need to learn about a new topic, I dive in head first.

Byron and I are now facing changes and challenges that require a whole new education. Thus, I am reading about all kinds of topics that I haven’t read about before so I’ve started calling this “my other reading.” Many of these books, articles, even research papers are recommended by our current support team which is made up of family and friends, doctors and our grief counselor, and new acquaintances who are going through similar things to what we are facing.

Some of this reading I am doing slowly, over time, because the topic is so intense emotionally. Others I am reading quickly needing the information right now already. And some are fiction that give me a completely different view and understanding of our situation.

This “other” reading is helping me understand, cope, prepare, and live with the certainty and uncertainties of life since Byron’s diagnosis.

My current “other” reading:

Being Mortal: Medicine and What Matters in the End, by Atul Gwandi, after having loaned it to our daughter to read. This is a reread for me. It’s such an important topic, rarely discussed in public, but a book that I think everyone should read. We are all mortal.

The Emperor of All Maladies: A Biography of Cancer, by Siddhartha Mukherjee, is beautifully written, but difficult (emotionally) to read. I’m reading it a little bit at a time, learning sooo much about cancer, and finding passages that perfectly describe our life right now.

During one session recently, my grief counselor read to me an excerpt from the book, The Wild Edge of Sorrow: Rituals of Renewal and the Sacred Work of Grief, by Francis Weller. The passage she read to me was called “An Accumulation of Losses,” and it really hit home with me. So I ordered that book and am slowly reading it, savoring the wisdom it imparts.

She also recommended that I read the book Cured: Strengthen Your Immune System and Heal Your Life, by Jeffrey Rediger, MD. I was hesitant at first to read this one because “being cured” seemed like such a long shot when we are coming to terms with the finality of Byron’s diagnosis. But as the author says, “We have a lot of work to do, in both medicine and as a larger culture, when it comes to talking about death and understanding what it can tell us about life,” and this book is full of ideas to ponder about life when faced with a terminal diagnosis.

Last year, I read a fiction book that touched my heart. The Springtime of the Year, by Susan Hill, was a story of loss and grief. A young, newly married woman loses her husband in a sudden accident. Her journey through grief and how she found her way back into Life, was beautifully told.

I also recently read a non-fiction book by Chimamanda Ngozi Adiche. Notes on Grief, was about the sudden loss of her father during the Covid 19 quarantine (he did not have Covid), and her own journey through the grief and difficulties of losing him during a pandemic. I wrote a mini-review of it here.

One of the most poignant stories I’ve read about loss and grief is Hamnet, by Maggie O’Farrell. My review of it is here.

And finally, I am reading a lot of Mary Oliver‘s poetry…because she puts it into words…beautifully deep-felt words.